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A guide supporting decision-making regarding population-based genetic screening
Developing policies and reaching decisions regarding the implementation of screening programs or pilot projects are challenging endeavours which require consideration of multiple issues and types of evidence. A review and critical analysis of existing criteria and focus group discussions with various stakeholders regarding criteria and decision-making processes were undertaken by the genetics unit at the Quebec Agence d'Évaluation des technologies et des modes d'intervention en santé (AETMIS). The APOGEE-Net network was instrumental in ensuring input from an even broader range of actors, including policy-makers, thus allowing the development of a truly interdisciplinary decision support guide. A detailed account of the systematic and participative methodology used was published in Public Health Genomics. The guide proposes an original and structured approach to the analysis of evidence and values with a view to facilitating the appreciation of benefits and risks from the individual and collective perspectives.
To obtain a copy of the decision guide, please register at info@cangenetest.org.
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